Cross-cultural translation and validation of the IBD-control questionnaire in The Netherlands: a patient-reported outcome measure in inflammatory bowel disease.

Published on Feb 1, 2021in Scandinavian Journal of Gastroenterology2.13
· DOI :10.1080/00365521.2020.1857430
Michiel E. de Jong3
Estimated H-index: 3
(Radboud University Nijmegen),
Erik Taal51
Estimated H-index: 51
(UT: University of Twente)
+ 6 AuthorsMaurice G. Russel38
Estimated H-index: 38
There is a need for easy-to-use patient-reported outcome measures (PROMS) in inflammatory bowel disease (IBD) practice. The ‘IBD-control’ is a short IBD-specific questionnaire capturing disease con...
📖 Papers frequently viewed together
#1M E de Jong (Radboud University Nijmegen)H-Index: 1
#2Lisa J T Smits (Radboud University Nijmegen)H-Index: 6
Last. Frank Hoentjen (Radboud University Nijmegen)H-Index: 16
view all 9 authors...
BACKGROUND AND AIMS: There is paucity of data on safety and efficacy of anti-TNF in elderly inflammatory bowel disease (IBD) patients. We aimed to compare the long-term treatment failure rates and safety of a first anti-TNF agent in IBD patients between different age groups ( /=60 years). METHODS: IBD patients who started a first anti-TNF agent were identified through IBDREAM, a multicentre prospective IBD registry. Competing risk regression was used to study treatment failure, defined as time t...
11 CitationsSource
#1Subrata Ghosh (University of Birmingham)H-Index: 85
#2Edouard LouisH-Index: 37
Last. Laurent Peyrin-Biroulet (French Institute of Health and Medical Research)H-Index: 103
view all 15 authors...
Background: The Inflammatory bowel disease (IBD) Disability Index is a validated tool that evaluates functional status; however, it is used mainly in the clinical trial setting. We describe the use of an iterative Delphi consensus process to develop the IBD Disk-a shortened, self-Administered adaption of the validated IBD Disability Index-to give immediate visual representation of patient-reported IBD-related disability. Methods: In the preparatory phase, the IBD CONNECT group (30 health care pr...
35 CitationsSource
#1A. Keogh (National University of Ireland, Galway)
#1A. KeoghH-Index: 1
Last. M. BurkeH-Index: 1
view all 2 authors...
1 CitationsSource
#1Belinda D Jackson (University of Melbourne)H-Index: 4
#2Kathleen Gray (University of Melbourne)H-Index: 24
Last. Peter De Cruz (University of Melbourne)H-Index: 20
view all 4 authors...
Background and Aims: Electronic-health technologies (eHealth) such as Web-based interventions, virtual clinics, smart-phone applications, and telemedicine are being used to manage patients with inflammatory bowel disease (IBD). We aimed to: (1) Evaluate the impact of eHealth technologies on conventional clinical indices and patient-reported outcome measures (PROs) in IBD; (2) assess the effectiveness, cost-effectiveness and feasibility of using eHealth technologies to facilitate the self-managem...
62 CitationsSource
#1Willie MuehlhausenH-Index: 6
#2Helen DollH-Index: 70
Last. Diane WildH-Index: 8
view all 7 authors...
Objective To conduct a systematic review and meta-analysis of the equivalence between electronic and paper administration of patient reported outcome measures (PROMs) in studies conducted subsequent to those included in Gwaltney et al’s 2008 review.
104 CitationsSource
#1Keith Bodger (University of Liverpool)H-Index: 26
#2Clare Ormerod (University of Liverpool)H-Index: 2
Last. Melanie HarrisonH-Index: 1
view all 4 authors...
Introduction The use of patient reported outcome measures to support routine inflammatory bowel disease (IBD) care is not widespread and suggests that existing questionnaires lack relevance to day-to-day decisions or are too cumbersome to administer. We developed a simple, generic tool for capturing disease control from the patient9s perspective to address these barriers. Methods Development based on literature review, patient focus groups/interviews and a steering group, defining a limited set ...
79 CitationsSource
#1Laurent Peyrin-Biroulet (French Institute of Health and Medical Research)H-Index: 103
#2Alarcos Cieza (LMU: Ludwig Maximilian University of Munich)H-Index: 83
Last. Jean-Frederic ColombelH-Index: 164
view all 9 authors...
Objective The impact of inflammatory bowel disease (IBD) on disability remains poorly understood. The World Health Organization’s integrative model of human functioning and disability in the International Classification of Functioning, Disability and Health (ICF) makes disability assessment possible. The ICF is a hierarchical coding system with four levels of details that includes over 1400 categories. The aim of this study was to develop the first disability index for IBD by selecting most rele...
224 CitationsSource
#1Tony Hak (EUR: Erasmus University Rotterdam)H-Index: 22
#2Kees van der VeerH-Index: 12
Last. Harrie JansenH-Index: 5
view all 3 authors...
Three-Step Test-Interview (TSTI) is a method for pretesting a self-completion questionnaire by first observing actual instances of interaction between the instrument and respondents (the response process) before exploring the reasons for this behavior. The TSTI consists of the following three steps: 1. (Respondent-driven) observation of response behavior. 2. (Interviewer-driven) follow-up probing aimed at remedying gaps in observational data. 3. (Interviewer-driven) debriefing aimed at eliciting...
70 CitationsSource
#1S.L. Jowett (University of Newcastle)H-Index: 7
#2Chris J. Seal (University of Newcastle)H-Index: 46
Last. M R Welfare (University of Newcastle)H-Index: 17
view all 4 authors...
The short inflammatory bowel disease questionnaire is reliable and responsive to clinically important change in ulcerative colitis
138 CitationsSource
#1Dorcas E. BeatonH-Index: 58
#2Claire BombardierH-Index: 108
Last. Marcos Bosi FerrazH-Index: 49
view all 4 authors...
With the increase in the number of multinational and multicultural research projects, the need to adapt health status measures for use in other than the source language has also grown rapidly. 1,4,27 Most questionnaires were developed in English-speaking countries, 11 but even within these countries, researchers must consider immigrant populations in studies of health, especially when their exclusion could lead to a systematic bias in studies of health care utilization or quality of life. 9,11 T...
5,596 CitationsSource
Cited By2
#2Mando D. FilipeH-Index: 3
Last. M. C. Richir (VUMC: Vanderbilt University Medical Center)H-Index: 3
view all 9 authors...
Objective null COVID-19 has put a strain on regular healthcare worldwide. For inflammatory bowel disease (IBD), gastrointestinal surgeries were postponed and changes in treatment and diagnostic procedures were made. As abrupt changes in treatment regimens may result in an increased morbidity and consequent well-being of patients with IBD, the aim of this study was to determine the effect of the COVID-19 pandemic on health-related quality of life (HRQoL) in patients with IBD. null Design null All...
#1Annabell Müller (University Hospital of Basel)
#2Selina Simone Bilger (University Hospital of Basel)
Last. Jan Hendrik Niess (University of Basel)H-Index: 7
view all 9 authors...
Hintergrund Auf dem Weg zu einer wertebasierten und patientenzentrierten medizinischen Versorgung ruckt das subjektiv vom Patienten empfundene Ergebnis einer Behandlung zunehmend in den Fokus. Als Messinstrument dienen dabei Patient-reported Outcome Measures (PROMs). Bei chronisch entzundlichen Darmerkrankungen hat sich der englischsprachig validierte Fragebogen IBD-Control zur Messung des Behandlungserfolgs aus Patientensicht etabliert. Da dieser bisher nicht auf Deutsch vorliegt, machte sein E...