Telephone follow-up after treatment for endometrial cancer: A qualitative study of patients' and clinical nurse specialists' experiences in the ENDCAT trial.

Published on Jun 1, 2018in European Journal of Oncology Nursing2.398
· DOI :10.1016/J.EJON.2018.02.005
Susan Williamson11
Estimated H-index: 11
(UCLan: University of Central Lancashire),
Kinta Beaver31
Estimated H-index: 31
(UCLan: University of Central Lancashire)
+ 1 AuthorsPierre L. Martin-Hirsch25
Estimated H-index: 25
(Lancashire Teaching Hospitals NHS Foundation Trust)
Sources
Abstract
Purpose: Endometrial cancer is the sixth most common female cancer worldwide. There is little evidence that routine hospital surveillance increases survival or decreases morbidity following treatment. Gynaecology Oncology clinical nurse specialists (CNSs) are ideally placed to provide the care, information and support to enable women with a gynaecological cancer to self-manage and live well. A multi-centre randomised controlled trial (RCT) compared hospital follow-up (HFU) with telephone follow-up (TFU) by CNSs. The structured telephone intervention focused on information provision to meet patients psychosocial and information needs. This study aimed to explore the views of women who had received TFU and the CNS's who had delivered the service. Method: A qualitative study to complement the RCT using semi-structured interviews was conducted. Twentyfive patients were randomly selected from participants in the TFU arm stratified by study site. Seven CNSs were interviewed. Results: Patient and CNS regarded TFU positively; Three themes emerged from the patient interviews; Convenient Care, Discrete Personalised Care, Confidence and Reassurance. Themes arising from the CNS interviews were Patient Centred Care, Holistic Care and, Confidence and Skills. Patients found that TFU with CNS's was convenient and enabled discussion of issues and information provision at time-points relevant to them. The CNS's found the structured format of TFU enabled them to utilise their skills and knowledge to identify and meet patients holistic needs. Conclusions: Alternative models of care such as TFU provided by CNSs provides the care, information and support to enable women treated for endometrial cancer to self-manage and live well.
📖 Papers frequently viewed together
References36
Newest
#1Mette Moustgaard Jeppesen (University of Southern Denmark)H-Index: 9
#2Ole Mogensen (University of Southern Denmark)H-Index: 30
Last. Pernille Tine Jensen (University of Southern Denmark)H-Index: 23
view all 6 authors...
AbstractBackground: Considerable controversy remains as to the optimal organization of endometrial cancer follow-up.Aim: To evaluate the relationship between the way recurrence was detected and survival after treatment for endometrial cancer. Further, to identify characteristics associated with a pre-scheduled examination in women with symptomatic recurrence.Material and methods: All women with early stage endometrial cancer during 2005–2009 were included in a population-based historical cohort ...
Source
#1Kinta Beaver (UCLan: University of Central Lancashire)H-Index: 31
#2Susan Williamson (UCLan: University of Central Lancashire)H-Index: 11
Last. Pierre L. Martin-Hirsch (Lancashire Teaching Hospitals NHS Foundation Trust)H-Index: 25
view all 18 authors...
Objective To evaluate the effectiveness of nurse-led telephone follow-up (TFU) for patients with stage–I endometrial cancer. Design Multicentre, randomised, non-inferiority trial. Setting Five centres in the North West of England. Sample A cohort of 259 women treated for stage–I endometrial cancer attending hospital outpatient clinics for routine follow-up. Methods Participants were randomly allocated to receive traditional hospital based follow-up (HFU) or nurse-led TFU. Main outcome measures P...
Source
#1Lucy Biddle (UoB: University of Bristol)H-Index: 20
#2Sangeetha Paramasivan (UoB: University of Bristol)H-Index: 15
Last. William Hollingworth (UoB: University of Bristol)H-Index: 65
view all 6 authors...
Abstract Purpose Psychosocial needs assessment is recommended for patients undergoing cancer treatment, but trials of effectiveness of assessment tools provide mixed results. This qualitative study aimed to understand how such tools are experienced by patients and clinicians in order to optimise use in the future. Methods Qualitative interviews were used in a mixed-methods sequential design following a randomised controlled trial of needs assessment using the Distress Thermometer and Problem Lis...
Source
#1Susan Williamson (UCLan: University of Central Lancashire)H-Index: 11
#2Karen Chalmers (University of Manchester)H-Index: 22
Last. Kinta Beaver (UCLan: University of Central Lancashire)H-Index: 31
view all 3 authors...
Abstract Purpose Colorectal cancer is the third most prevalent cancer worldwide, although mortality rates across most of Europe have decreased in recent years. Historically, patients are asked to return to hospital outpatient clinics following treatment to monitor for disease progression. However, new approaches are being called for that focus on meeting the information and support needs of patients. Telephone follow-up (TFU) by specialist nurses is an alternative approach; this study aimed to e...
Source
#1Nisar Ahmed (University of Sheffield)H-Index: 12
#2Sam H. Ahmedzai (University of Sheffield)H-Index: 42
Last. Bill Noble (University of Sheffield)H-Index: 16
view all 4 authors...
There is evidence to suggest that patients with cancer and other non-malignant chronic progressive illnesses can experience distressing symptoms, or concerns, which can often remain unrecognised. There is little disagreement that routine systematic questioning is useful in identifying supportive or palliative care needs that would otherwise not be identified. The purpose of this article is to provide an overview of holistic needs assessment in the fields of supportive and palliative care and to ...
Source
#1Joseph D. Tariman (DePaul University)H-Index: 17
#2Ardith Z. Doorenbos (UW: University of Washington)H-Index: 33
Last. Donna L. Berry (Harvard University)H-Index: 45
view all 5 authors...
© 2014 Harborside Press® Abstract Information-sharing is an integral part of cancer care. Several studies have examined the information needs of patients with various types of cancer. However, the priorities of information needs among patients with cancer have not been reported. A systematic review was performed to identify published studies that examined priorities of information needs in patients with cancer. PubMed (1966 to February 2012), PsycINFO (1967 to February 2012), and CINAHL (1982 to...
Source
#1Annamarie MooreH-Index: 2
#2Agnes Higgins (Trinity College, Dublin)H-Index: 32
Last. Danika Sharek (Trinity College, Dublin)H-Index: 12
view all 3 authors...
Abstract Purpose Testicular cancer occurs at a time in a man's life when major social life changes are occurring and when body image, fertility, sexual desire and performance can be central issues. Oncology nurses, as members of the multidisciplinary team, are in an ideal position to address men's concerns. The aim of this study was to investigate oncology nurses' self-perceived knowledge and comfort in relation to discussing sexuality concerns with men diagnosed with testicular cancer and to id...
Source
#1Michael Jefford (University of Melbourne)H-Index: 41
#2Julia H. RowlandH-Index: 80
Last. Adam Glaser (St. John's University)H-Index: 32
view all 6 authors...
Increasing cancer incidence together with improved survival rates are contributing to the growing number of cancer survivors. Survivors may encounter a range of potential effects as a result of the cancer itself or cancer treatments. Traditionally, the major focus of follow-up care has been on detection of cancer recurrence; however, the efficacy of such strategies is questionable. Traditional follow-up frequently fails to identify or adequately address many survivors' concerns. Aftercare needs ...
Source
#1Kinta Beaver (UCLan: University of Central Lancashire)H-Index: 31
#2Malcolm Campbell (University of Manchester)H-Index: 27
Last. Shabbir Susnerwala (Lancashire Teaching Hospitals NHS Foundation Trust)H-Index: 8
view all 7 authors...
Aim Following treatment for colorectal cancer it is common practice for patients to attend hospital clinics at regular intervals for routine monitoring, although debate persists on the benefits of this approach. Nurse-led telephone follow-up is effective in meeting information and psycho-social needs in other patient groups. We explored the potential benefits of nurse-led telephone follow-up for colorectal cancer patients. Method Sixty-five patients were randomized to either telephone or hospita...
Source
#1Ragnhild Johanne Tveit Sekse (Haukeland University Hospital)H-Index: 10
#2Målfrid RåheimH-Index: 18
Last. Eva GjengedalH-Index: 26
view all 4 authors...
Aims and objectives. The aim of this qualitative study is to highlight how women experienced living through gynaecological cancer. Background. The increasing number of long-term survivors after cancer has created a greater need for knowledge about how patients live through the illness. Design. A qualitative design, with a phenomenological–hermeneutical perspective, provided the framework for the study. Method. Thirty-two unstructured in-depth interviews with 16 women were conducted. Each woman w...
Source
Cited By7
Newest
#1Manolis Nikolopoulos (St Helier Hospital)
#2Michelle A.L. Godfrey (QA: Queen Alexandra Hospital)H-Index: 2
Last. Rekha Wuntakal (The Queen's Medical Center)H-Index: 7
view all 6 authors...
OBJECTIVE To investigate the rate of asymptomatic recurrence of stage 1 endometrioid endometrial cancer and assess the role of routine hospital follow-up after treatment. METHODS We performed a retrospective case-note review study of women who were diagnosed with stage 1 endometrioid endometrial adenocarcinoma at Queen's Hospital, Romford, between January 2008 and December 2016. RESULTS We included 299 patients with a median follow-up period of 44.4 months. All the patients underwent total hyste...
Source
The telemedicine studies, takes care and prevents diseases at distance basing on the interaction among physicians and patients remotely. Few data are available on its application to early postoperative after surgery. The endpoints of our preliminary experience were the detection, as primary, of feasibility and safety of home telemonitoring after robotic colo-rectal resection and, as secondary, perception and satisfaction of the patients. From December 2019 to March 2020, at the Division of Robot...
Source
#1Susan Williamson (UCLan: University of Central Lancashire)H-Index: 11
#2Thomas F. Hack (UM: University of Manitoba)H-Index: 52
Last. Kinta Beaver (UCLan: University of Central Lancashire)H-Index: 31
view all 5 authors...
Purpose Personalised information and support can be provided to cancer survivors using a structured approach. Needs assessment tools such as the Holistic Needs Assessment (HNA) in the United Kingdom and the Comprehensive Problem and Symptom Screening (COMPASS) questionnaire in Canada are recommended for use in practice; however, they are not widely embedded into practice. The study aimed to determine the extent to which nurses working in cancer care in the UK and Manitoba value NA and identify a...
Source
#1Leanne Shearsmith (University of Leeds)H-Index: 3
#2Fiona Kennedy (University of Leeds)H-Index: 6
Last. Galina Velikova (University of Leeds)H-Index: 65
view all 4 authors...
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for patient-reported outcome measures (PROMs) to capture key symptoms and online technology to facilitate long-term follow-up has been suggested. Objectives Prior to a pilot study exploring the potential for electronic patient-reported symptom monit...
Source
BACKGROUND: Telemedicine is becoming more popular in many medical specialties but few studies have been conducted in General Surgery. This study aims to evaluate the feasibility of its introduction in this specialty. METHODS: A prospective randomized clinical trial (RCT) was conducted in 200 patients to compare conventional vs telemedicine follow-up in the outpatient clinics. The primary outcome was the feasibility of telemedicine follow-up and the secondary outcomes were its clinical impact and...
Source
#1Kinta Beaver (UCLan: University of Central Lancashire)H-Index: 31
#2Susan Williamson (UCLan: University of Central Lancashire)H-Index: 11
Last. Pierre L. Martin-Hirsch (Lancashire Teaching Hospitals NHS Foundation Trust)H-Index: 25
view all 5 authors...
Abstract Purpose Alternatives to hospital follow-up (HFU) following treatment for cancer have been advocated. Telephone follow-up (TFU) and patient-initiated follow-up are being implemented but it is unclear if these approaches will meet the preferences and needs of patients. This study aimed to explore the preferences of endometrial cancer patients and their levels of satisfaction with HFU and nurse-led TFU. Methods A cross-sectional survey design was utilised and a questionnaire was administer...
Source
#1Nadia Corsini (UniSA: University of South Australia)H-Index: 12
#2Kim Neylon (UniSA: University of South Australia)H-Index: 1
Last. Saravana Kumar (UniSA: University of South Australia)H-Index: 28
view all 11 authors...
As a treatment summary (TS) documents information for follow-up care, it is believed to be an important communication tool for the patient, their GP, and other health professionals. The aim of this systematic review (SR) was to evaluate the impact of receiving a TS for cancer survivors when compared to receiving standard care and to identify knowledge gaps to inform future research. A systematic search of electronic databases and grey literature was undertaken from August 2018 to October 2018. S...
Source
Abstract Objectives To assess the effectiveness and patient satisfaction of a nurse-led telephone follow-up service in children following surgery for sleep disordered breathing (SDB)/obstructive sleep apnoea (OSA) in a tertiary Paediatric hospital. Design Prospective observational uncontrolled study. Participants Children under the age of 16 undergoing adenoid and/or tonsil surgery between June 2015 and June 2018 for SDB or OSA. Parents were contacted by telephone six weeks post-operatively by a...
Source
This website uses cookies.
We use cookies to improve your online experience. By continuing to use our website we assume you agree to the placement of these cookies.
To learn more, you can find in our Privacy Policy.