“An orchestra without a conductor”: A qualitative exploration of the journey from symptom onset to diagnosis in patients with severe gastrointestinal dysmotility

Gastrointestinal dysmotility (GID) covers a spectrum of disorders disrupting enteric neuromuscular co-ordination which, when severe, causes intractable gastrointestinal symptoms, malnutrition and is a recognised cause of chronic intestinal failure. To date, no study has provided an in-depth account of the experiences of patients with severe GID and their psychosocial needs. This study aimed to explore patients’ experiences from symptom onset and...