Cancer survivorship care plans: Processes, effective strategies, and challenges in a Northern Plains rural state.

Published on Jul 1, 2018in Public Health Nursing1.462
· DOI :10.1111/PHN.12393
Mary J. Isaacson6
Estimated H-index: 6
(South Dakota State University),
Polly A. Hulme10
Estimated H-index: 10
(South Dakota State University)
+ 1 AuthorsJennifer L. Kerkvliet9
Estimated H-index: 9
(South Dakota State University)
Sources
Abstract
OBJECTIVES: Health systems face resource and time barriers to developing and implementing cancer survivorship care plans (SCPs) when active cancer treatment is completed. To address this problem, the South Dakota (SD) Department of Health partnered with two of SD's largest health systems to create the SD Survivorship Program. The purpose of this program evaluation study was to describe and compare SCP development and implementation at the two health systems. DESIGN & SAMPLE: A descriptive qualitative design was used. Interview participants were instrumental in the development and implementation of SCPs within their respective health system. MEASURES: Content analysis was used to analyze the interview data. RESULTS: The two health systems used similar processes for (a) early designation of program personnel, (b) developing SCP templates, (c) provider/staff input, and (d) identifying/tracking eligible patients. In contrast, they developed differing processes for SCP completion and delivery. The two health systems also identified effective strategies and challenges in SCP development and implementation. CONCLUSION: This evaluation suggests that partnerships between state health departments and local health systems could be key for meeting the nation-wide goal of universal SCP implementation. Particularly, other low-population rural states like SD can use the findings to help build their SCP programs.
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References20
Newest
#1Lonneke V. van de Poll-Franse (NKI-AVL: Netherlands Cancer Institute)H-Index: 57
#2Kim A.H. Nicolaije (Tilburg University)H-Index: 11
Last. Nicole P. M. Ezendam (Tilburg University)H-Index: 22
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AbstractBackground: To help the growing number of cancer survivors deal with the challenges of cancer survivorship, survivorship care plans (SCPs) were recommended by the Institute of Medicine (IOM) in 2006. The SCP is a formal document that contains both a tailored treatment summary and a follow-up care plan. Since the IOM recommendation 10 years ago, the implementation in daily clinical practice is minimal. Several studies have investigated the effects of SCPs on patient-reported outcomes and ...
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#1Elizabeth Kvale (UAB: University of Alabama at Birmingham)H-Index: 27
#2Chao-Hui Sylvia Huang (UAB: University of Alabama at Birmingham)H-Index: 3
Last. Christine S. Ritchie (UCSF: University of California, San Francisco)H-Index: 58
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BACKGROUND To the authors' knowledge, few studies to date have evaluated the effects of survivorship care planning on the care transition process from specialty cancer care to self-management and primary care, patient experience, or health outcomes. The Patient-owned Survivorship Transition Care for Activated, Empowered survivors (POSTCARE) is a single coaching encounter based on the Chronic Care Model that uses motivational interviewing techniques to engage survivors of breast cancer. The curre...
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Background: Cancer survivors are a growing population, due in large part to the aging of the baby boomer generation and the related “silver tsunami” facing the U.S. health care system. Understanding the impact of a graying nation on cancer prevalence and comorbidity burden is critical in informing efforts to design and implement quality cancer care for this population. Methods: Incidence and survival data from 1975 to 2011 were obtained from the Surveillance, Epidemiology, and End Results (SEER)...
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#1Kelly M. KenzikH-Index: 18
#2Elizabeth Kvale (UAB: University of Alabama at Birmingham)H-Index: 27
Last. Maria Pisu (UAB: University of Alabama at Birmingham)H-Index: 27
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Treatment summaries and follow-up care plan information should be provided to cancer survivors. This study examines the association of receiving summaries and care plans with cancer survivor self-efficacy for chronic illness management, and whether self-efficacy was associated with health care utilization.Four hundred forty-one cancer survivors (≥2 years from diagnosis and had completed treatment) ≥65 years old from 12 cancer centers across 5 states completed telephone surveys. Survivors respond...
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#1Kimberly D. Miller (ACS: American Cancer Society)H-Index: 29
#2Rebecca L. Siegel (ACS: American Cancer Society)H-Index: 68
Last. Ahmedin Jemal (ACS: American Cancer Society)H-Index: 139
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The number of cancer survivors continues to increase because of both advances in early detection and treatment and the aging and growth of the population. For the public health community to better serve these survivors, the American Cancer Society and the National Cancer Institute collaborate to estimate the number of current and future cancer survivors using data from the Surveillance, Epidemiology, and End Results cancer registries. In addition, current treatment patterns for the most prevalen...
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#1Sofia F. Garcia (NU: Northwestern University)H-Index: 18
Last. Frank J. PenedoH-Index: 62
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: Cancer survivorship care plans (SCPs) have been recommended to improve clinical care and patient outcomes. Research is needed to establish their efficacy and identify best practices. Starting in 2015, centers accredited by the American College of Surgeons Commission on Cancer must deliver SCPs to patients completing primary cancer treatment with curative intent. We describe how we established routine SCP delivery at the Robert H Lurie Comprehensive Cancer Center in Chicago, Illinois, using the...
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#1Deborah K. Mayer (UNC: University of North Carolina at Chapel Hill)H-Index: 40
#2Sarah A. BirkenH-Index: 23
Last. Ronald C. Chen (UNC: University of North Carolina at Chapel Hill)H-Index: 33
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There are now almost 14 million cancer survivors in the US, and this number is projected to increase in the next 10 years as the population ages.1 As improvements in cancer treatments increase the number of long-term survivors, survivorship health issues have emerged as an important public health concern.2 Multiple recent studies have demonstrated that cancer survivors are less likely to receive general preventive care and care associated with non-cancer-related medical conditions than individua...
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#1SarahMaria Donohue (UW: University of Wisconsin-Madison)H-Index: 4
#2Mary E. Sesto (UW: University of Wisconsin-Madison)H-Index: 18
Last. Amye J. Tevaarwerk (UW: University of Wisconsin-Madison)H-Index: 21
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Survivorship care plans for cancer survivors may facilitate provider-to-provider communication. Primary care provider (PCP) perspectives on care plan provision and use are limited, especially when care plans are generated by an electronic health record (EHR) system. We sought to examine PCPs' perspectives regarding EHR-generated care plans. Methods: PCPs (N 160) who were members of the Wis- consin Research and Education Network listserv received a sample 10-page plan (WREN cohort). PCPs (n 81) w...
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#1James Zabora (Inova Health System)H-Index: 26
#2Sage Bolte (Inova Health System)H-Index: 2
Last. Carrie Lynn Friedman (Inova Health System)H-Index: 1
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Objectives To provide an overview of issues and challenges associated with integrating development of survivorship care plan processes with electronic medical records (EMRs). Data Sources Published peer-reviewed literature. Conclusion Evidence seems to indicate that survivorship care plans have value to survivors, oncology specialist providers, and primary care providers. Yet, the existence of cost and time restraints are major barriers to creation and use of survivorship care plans, and the exp...
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#3Claire Frances Snyder (UNC: University of North Carolina at Chapel Hill)H-Index: 13
The seminal report from the Institute of Medicine, “From Cancer Patient to Cancer Survivor: Lost in Transition,” identified four essential components of survivorship care and recommended that a survivorship care plan (SCP), consisting of a treatment summary and follow-up care plan, be developed and used as a tool to deliver patient-centered care by enhancing communication between the oncology team and the patient as well as communication and coordination of care between the oncology team and the...
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#1Fiona Crawford-Williams (University of Southern Queensland)H-Index: 8
#2Belinda C. Goodwin (University of Southern Queensland)H-Index: 10
Last. Jeff Dunn (University of Southern Queensland)H-Index: 48
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Objective null This study aimed to understand how cancer survivors in rural Queensland seek and receive information, as well as their preferences regarding the content and delivery of health-related information. null Methods null This study explored cancer survivors' experiences in seeking and comprehending health information using a qualitative descriptive approach. Semi-structured interviews were conducted with 24 participants. Data were analysed using reflexive thematic analysis. null Results...
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#1Katherine Clegg Smith (Johns Hopkins University)H-Index: 26
#2Sharon M. White (Johns Hopkins University)H-Index: 3
Last. Kimberly S. Peairs (Johns Hopkins University)H-Index: 13
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Survivorship care plans (SCPs) are recommended to promote appropriate follow-up care, but implementation has been limited. We conducted a randomized controlled trial comparing three SCP delivery models in two health systems. We utilize mixed methods to compare the feasibility and participants’ perceived value of the three models. Patients completing treatment for stage I–III breast, prostate, or colorectal cancer from one urban-academic and one rural community cancer center were randomized to (1...
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#1Pamela B. DeGuzman (UVA: University of Virginia)H-Index: 10
#2David L. Vogel (Iowa State University)H-Index: 60
Last. Mark J. Jameson (UVA: University of Virginia)H-Index: 18
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To determine the impact of a telemedicine-delivered intervention aimed at identifying unmet needs and cancer-related distress (CRD) following the end of active treatment on supportive care referral patterns. We used a quasi-experimental design to compare supportive care referral patterns between a group of rural cancer survivors receiving the intervention and a control group (N = 60). We evaluated the impact of the intervention on the number and type of referrals offered and whether or not the p...
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#1Annie M Young (Warw.: University of Warwick)H-Index: 1
#2Andreas Charalambous (UTU: University of Turku)H-Index: 25
Last. Winnie K.W. So (CUHK: The Chinese University of Hong Kong)H-Index: 26
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Summary Oncology nurses are at the heart of tackling the increasing global burden of cancer. Their contribution is unique because of the scale and the diversity of care roles and responsibilities in cancer care. In this Series paper, to celebrate the International Year of the Nurse and Midwife, we highlight the contribution and impact of oncology nurses along the cancer care continuum. Delivering people-centred integrated care and optimal communication are essential components of oncology nursin...
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#2Shaila M. Strayhorn (UIC: University of Illinois at Chicago)H-Index: 5
Last. Timiya S. Nolan (OSU: Ohio State University)H-Index: 6
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PURPOSE Racial/ethnic breast cancer survivorship disparities persist as minority breast cancer survivors (MBCSs) report fragmentation in survivorship care, namely in the access and delivery of survivorship care plans (SCPs). To better understand care coordination of MCBS, this review elucidated concerns of female MBCS about their preparation for post-treatment survivorship care, the preferred practices for the delivery of a SCP, and the associated content to improve post-treatment survivorship c...
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#1Taylor P. Stewart (UW: University of Wisconsin-Madison)H-Index: 2
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Survivorship care plans (SCPs) may facilitate cancer survivorship care shared between oncologists and primary care, particularly for patients more likely to receive care across healthcare systems such as rural patients. However, limited research has addressed primary care clinicians' information or workflow needs with regard to SCPs. This study's objective was to assess primary care clinicians' perceived usefulness with a re-engineered SCP previously developed by applying engineering approaches ...
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PURPOSE: Rural cancer survivors have worse quality of life than their urban counterparts. Telemedicine is a potential solution to connecting rural residents with specialized cancer providers during the survivorship period, but limitations in broadband may stifle the impact. Using data from a feasibility study evaluating a telemedicine intervention aimed at connecting rural Virginia cancer survivors with their care team located at a cancer center associated with an academic medical center, we sou...
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#1Nadia Corsini (UniSA: University of South Australia)H-Index: 12
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As a treatment summary (TS) documents information for follow-up care, it is believed to be an important communication tool for the patient, their GP, and other health professionals. The aim of this systematic review (SR) was to evaluate the impact of receiving a TS for cancer survivors when compared to receiving standard care and to identify knowledge gaps to inform future research. A systematic search of electronic databases and grey literature was undertaken from August 2018 to October 2018. S...
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#1Marquita W. Lewis-Thames (NU: Northwestern University)H-Index: 3
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PURPOSE: As disparities in rural-urban cancer survivorship rates continue to widen, optimizing patient-provider communication regarding timely follow-up care is a potential mechanism to improving survivorship-related outcomes. The current study examines sociodemographic and health predictors of posttreatment patient-provider communication and follow-up care and associations between written communication and timely follow-up care for cancer survivors who identify as rural. METHODS: Data were anal...
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