Pathology

Family caregivers

Disease

Coronavirus disease 2019 (COVID-19)

Mathematics

Family medicine

Infectious disease (medical specialty)

Pandemic

Statistics

Mental health

Psychiatry

Nursing

Descriptive research

Psychology

Descriptive statistics

Family member

Medicine

Clinical Nursing Research

The purpose of this descriptive study was to describe family caregivers’ experiences and changes in caregiving tasks and approaches during the COVID-19 pandemic. Using web-based strategies, 69 family caregivers of adults with chronic or disabling conditions were recruited and completed an online survey about positive and negative caregiving experiences, and ways in which caregiving has changed. Data were analyzed using descriptive statistics (structured questions) and conventional content analysis (open-ended responses). Participants reported concerns about their loved one’s physical and mental health, the limited access to other caregiving sources, and the limited opportunities to maintain personal well-being. Caregiving tasks completed more than usual included providing emotional support, shopping for groceries and essentials, and contacting healthcare providers. Participants modified their caregiving approach by assuming added responsibilities, leveraging technology, and managing a new caregiving routine. Findings indicate that family caregivers experienced additional caregiving challenges and changed caregiving tasks considering the limited resources available.

Family Caregivers’ Experiences and Changes in Caregiving Tasks During the COVID-19 Pandemic