The testing and validation of the German version of the impact on family scale in families with children with disabilities

Published on Sep 1, 2001in Psychotherapie Psychosomatik Medizinische Psychologie
· DOI :10.1055/S-2001-16899
U Ravens-Sieberer1
Estimated H-index: 1
(Eppendorf (Germany)),
Matthias Morfeld17
Estimated H-index: 17
+ 3 AuthorsUte Thyen38
Estimated H-index: 38
Sources
Abstract
Despite increased interest in the wellbeing of families with children with chronic conditions and disabilities, instruments to assess family impact of health conditions are still lacking in German speaking countries. The Impact on Family Scale has been developed in the Anglo-american literature as a self report instrument to assess the consequences of chronic conditions and disability in childhood and adolescence for the family. The present paper describes the translation and psychometric testing of a German version of the Impact on Family scale (Familien-Belastungs[FaBel]-Questionnaire). The questionnaire contains 33 Likert-scaled items to assess the general negative impact of parents, the description of social relationships, the concern for siblings, the financial impact and problems in coping as well as a total score. The FaBel questionnaire was used and tested for psychometric criteria of reliability and validity in a cross-sectional study of 273 families with children with chronic conditions and disabilities. The results of this psychometric testing of the FaBel-Questionnaire show acceptance by responders, acceptable construct validity, good internal consistency and discriminant validity. The psychometric structure of the questionnaire corresponds with psychometric results with another German population of children with chronic conditions. The results suggest the applicability of the instrument to assess family impact of chronic disease and disability in children and adolescents.
📖 Papers frequently viewed together
26 Citations
10 Citations
429 Citations
References0
Newest
Cited By44
Newest
#1Jana Willems (University of Freiburg)
#2Erik Farin-Glattacker (University of Freiburg)H-Index: 1
Last. Thorsten Langer (University of Freiburg)H-Index: 5
view all 3 authors...
Background: Spinal muscular atrophy (SMA) is a rare neuromuscular disease characterized by degeneration of the anterior horn cells in the spinal cord, resulting in muscle atrophy and proximal muscle weakness. SMA presents with a wide range of symptoms requiring multiple clinical specialists and therapists. Integrating care between disciplines can be challenging due to the dynamic course of the disease, and great distances between specialist centers and local providers. Insufficient care integrat...
Source
#1Irene Nieto-Eugenio (UCO: University of Córdoba (Spain))H-Index: 1
#2Manuel Romero-Saldaña (UCO: University of Córdoba (Spain))H-Index: 6
Last. Manuel Rich-Ruiz (UCO: University of Córdoba (Spain))H-Index: 4
view all 4 authors...
Abstract Background/Purpose Severe food allergies in children have serious consequences for their daily lives, but also for their families. The aim of the present study was to validate the impact on family scale (IOFS) in families of school-age children with severe food allergies (SFA) in Spain. Design/Methods A total of 299 families from south Spain were assessed using the IOFS. A factorial analysis was conducted to analyze the construct validity. The reliability of the questionnaire was assess...
Source
#1Kathleen TaitH-Index: 12
#2Francis Fung (HKU: University of Hong Kong)H-Index: 4
Last. Aihua HuH-Index: 4
view all 3 authors...
Source
#1Julia Roick (MLU: Martin Luther University of Halle-Wittenberg)H-Index: 7
#2Reinhard Berner (TUD: Dresden University of Technology)H-Index: 36
Last. Matthias Richter (MLU: Martin Luther University of Halle-Wittenberg)H-Index: 33
view all 21 authors...
BACKGROUND: About 2000 children and adolescents under the age of 18 are diagnosed with cancer each year in Germany. Because of current medical treatment methods, a high survival rate can be reached for many types of the disease. Nevertheless, patients face a number of long-term effects related to the treatment. As a result, physical and psychological consequences have increasingly become the focus of research in recent years. Social dimensions of health have received little attention in health s...
1 CitationsSource
#1Yorschua Jalil (UFRO: University of La Frontera)H-Index: 1
#2Gregory Villarroel (UC: Pontifical Catholic University of Chile)H-Index: 2
Last. Mireya Mendez (UC: Pontifical Catholic University of Chile)H-Index: 2
view all 9 authors...
The lack of formal instruments to measure Burden in primary caregivers of Children in a hospital context is limited because mostly of published instruments are related to cancer survivors, ambulatory environment or general context for children with chronic conditions, but none of them adapted property to prolonged hospitalization context. This leaves the rising population of hospitalized chronic children’s caregivers without a proper assessment. The aim of this study was to develop a version of ...
2 CitationsSource
#1Sigrid Haunberger (Zurich University of Applied Sciences/ZHAW)H-Index: 6
#2Cornelia RüeggerH-Index: 2
Last. Edgar BaumgartnerH-Index: 1
view all 3 authors...
This is the peer reviewed version which has been published in final form at https://doi.org/10.1002/pon.5045. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
Source
#1Teresa KernderH-Index: 1
#2Manfred Doepfner (University of Cologne)H-Index: 14
Last. Anja Goertz-DortenH-Index: 4
view all 4 authors...
Purpose To evaluate the psychometric properties of a German modification of the Weiss Functional Impairment Rating Scale—Parent Report for children with aggressive and oppositional behavior problems (WFIRS-P for ODD/CD).
2 CitationsSource
#1Lucia Sara D'Angiolella (University of Milano-Bicocca)H-Index: 7
#2Paolo Cortesi (University of Milano-Bicocca)H-Index: 39
Last. Lorenzo G. Mantovani (University of Milano-Bicocca)
view all 14 authors...
: Hemophilia is associated with a high financial burden on individuals, healthcare systems, and society. The development of inhibitors significantly increases the socioeconomic burden of the diseases. This study aimed to review and describe the burden of hemophilia with inhibitors, providing a reference scenario to assess the impact of new products in the real word. Two systematic literature reviews were performed to collect data on (i) health economics and (ii) health-related quality of life ev...
18 CitationsSource
#1Miriam ListingH-Index: 1
Last. Kirsten Minden (Charité)H-Index: 29
view all 14 authors...
Background Achieving the best possible health-related quality of life (HRQoL) for a patient is an important treatment goal in juvenile idiopathic arthritis (JIA). We investigated the 36-month trajectories of HRQoL in children with JIA compared with healthy peers and identified the predictors of an unfavorable HRQoL.
30 CitationsSource
#1Kathleen TaitH-Index: 12
#2Naomi SwellerH-Index: 19
Last. Jasna DjajicH-Index: 1
view all 6 authors...
1 Citations