Establishing a Canadian-Based Universal Unique Identifier for Congenital and Pediatric Cardiology Research

In pediatric and congenital cardiology research, there is tremendous value in assembling population-based cohorts of patients followed across their life span. However, tracking study participants across multiple institutions and jurisdictions is rendered difficult by the legal and ethical requirement for deidentification. The Canadian Congenital and Pediatric Cardiology Research Network (CCPCRN)1Dallaire F. Battista M.C. Greenway S.C. et al.The...