What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions
Abstract
Despite no consensus on the definition of 'seriousness', the concept is regularly used in policy and practice contexts to categorise conditions, determine access to genetic technologies and uses of selective pregnancy termination. Whilst attempts have been made to create taxonomies of genetic condition seriousness to inform clinical and policy decision-making, these have often relied on condition appraisals made by health and genetics...
Paper Details
Title
What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions
Published Date
Sep 27, 2021
Volume
30
Issue
2
Pages
160 - 169
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