Return of individual research results: What do participants prefer and expect?

Volume: 16, Issue: 7, Pages: e0254153 - e0254153
Published: Jul 29, 2021
Abstract
Newer data platforms offer increased opportunity to share multidimensional health data with research participants, but the preferences of participants for which data to receive and how is evolving. Our objective is to describe the preferences and expectations of participants for the return of individual research results within Project Baseline Health Study (PBHS). The PBHS is an ongoing, multicenter, longitudinal cohort study with data from four...
Paper Details
Title
Return of individual research results: What do participants prefer and expect?
Published Date
Jul 29, 2021
Journal
Volume
16
Issue
7
Pages
e0254153 - e0254153
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