Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)
Volume: 5, Issue: 4, Pages: e12519 - e12519
Published: May 1, 2021
Abstract
This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia-specific tool targeted at parents of boys aged <4 years. A secondary aim was to develop and validate the new tool.Focus groups were conducted with parents of boys with hemophilia and hemophilia health care providers at Canadian hemophilia treatment centers (HTCs) to review the...
Paper Details
Title
Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)
Published Date
May 1, 2021
Volume
5
Issue
4
Pages
e12519 - e12519
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