family caregivers

informal caregivers

formal informal

spousal caregivers

respite care

caregiver burden

long-term care

JAMA Network Open

<h3>Importance</h3> Family and unpaid caregivers often play an active role in managing the care of older adults with activity limitations. <h3>Objective</h3> To examine caregivers' experiences with older adults' health care workers. <h3>Design, Setting, and Participants</h3> This survey study constitutes a secondary analysis of a sample of 1916 family and unpaid caregivers to 1203 community-living older adults with activity limitations who participated in the 2017 National Health and Aging Trends Study. Data analysis was performed January to August 2019. <h3>Exposures</h3> Caregiver sociodemographic characteristics, caregiving intensity, and frequency speaking with or emailing older adults' health care workers. <h3>Main Outcomes and Measures</h3> Caregiver-reported experiences when interacting with older adults' health care workers in the prior year, including being listened to, being asked about understanding of treatments, and being asked about help needed in managing older adults' care. <h3>Results</h3> Caregivers (mean [SE] age, 59.4 [0.5] years; 63.7% women) assisting community-living older adults with activity limitations reported that they never (56.3%), sometimes or rarely (33.0%), or often (10.7%) spoke with or emailed older adults' health care workers in the prior year. Most caregivers who interacted with older adults' health care workers reported being always (70.6%) or usually (18.2%) listened to and always (54.4%) or usually (17.7%) being asked about their understanding of older adults' treatments. Fewer caregivers reported being always (21.3%) or usually (6.9%) asked whether they needed help managing older adults' care, and nearly one-half (45.0%) were never asked. Caregivers who interacted with older adults' health care workers often (vs sometimes or rarely) were more likely to report being always or usually listened to (94.8% vs 86.9%;<i>P</i> = .004), being asked about understanding treatments (80.1% vs 69.5%;<i>P</i> = .02), and being asked about needing help (40.8% vs 24.1%;<i>P</i> &lt; .001)....

Family Caregivers’ Experiences With Health Care Workers in the Care of Older Adults With Activity Limitations