Employment Outcomes, Financial Burden, Anxiety, and Depression Among Caregivers of African American Cancer Survivors.

Published on Mar 1, 2020in Journal of Oncology Practice3.84
路 DOI :10.1200/JOP.19.00410
Theresa A. Hastert18
Estimated H-index: 18
(WSU: Wayne State University),
Julie J. Ruterbusch24
Estimated H-index: 24
(WSU: Wayne State University)
+ 7 AuthorsAnn G. Schwartz72
Estimated H-index: 72
(WSU: Wayne State University)
Sources
Abstract
PURPOSE:Caregivers of cancer survivors may need to take time off work or make other employment changes to handle caregiving demands. Work impacts of caregiving, financial burden, and psychosocial o...
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References33
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#1Theresa A. Hastert (WSU: Wayne State University)H-Index: 18
#2Jaclyn M. Kyko (WSU: Wayne State University)H-Index: 1
Last. Ann G. Schwartz (WSU: Wayne State University)H-Index: 72
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Background: Financial hardship is common among cancer survivors and is associated with both limiting care due to cost and with poor health-related quality of life (HRQOL). This study estimates the association between limiting care due to cost and HRQOL in a diverse population of cancer survivors and tests whether limiting care mediates the association between financial hardship and HRQOL. Methods: We used data from 988 participants (579 African American, 409 white) in the Detroit Research on Can...
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#1Theresa A. Hastert (WSU: Wayne State University)H-Index: 18
#2Matthew P. Banegas (KP: Kaiser Permanente)H-Index: 21
Last. Ann G. Schwartz (WSU: Wayne State University)H-Index: 72
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Purpose Estimate prevalence of types of cancer-related financial hardship by race and test whether they are associated with limiting care due to cost.
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#1Janet S. de Moor (NIH: National Institutes of Health)H-Index: 25
#2Emily C. Dowling (Harvard University)H-Index: 18
Last. K. Robin Yabroff (NIH: National Institutes of Health)H-Index: 64
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Purpose Previous research describing how informal cancer caregiving impacts employment has been conducted in small samples or a single disease site. This paper provides population-based estimates of the effect of informal cancer caregiving on employment and characterizes employment changes made by caregivers.
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#1Benjamin D. Schalet (NU: Northwestern University)H-Index: 18
#2Paul A. Pilkonis (University of Pittsburgh)H-Index: 84
Last. David Cella (NU: Northwestern University)H-Index: 174
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Abstract Objectives The purpose of this study was to evaluate the responsiveness to change of the PROMIS negative affect measures (depression, anxiety, and anger) using longitudinal data collected in six chronic health conditions. Study Design and Setting Individuals with major depressive disorder (MDD), back pain, chronic obstructive pulmonary disease (COPD), chronic heart failure (CHF), and cancer completed PROMIS negative affect instruments as computerized adaptive test or as fixed-length sho...
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#1Roberto Angioli (Sapienza University of Rome)H-Index: 55
#2Stella Capriglione (Sapienza University of Rome)H-Index: 19
Last. Francesco Plotti (Sapienza University of Rome)H-Index: 29
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Objectives The life of a family caregiver changes in many ways when cancer is diagnosed. Changes regard also financial costs. To the authors鈥 knowledge, little work has been done to estimate the costs associated with caregiving for cancer patients. The aim of the present study is to evaluate for the first time in literature the economic changes among family caregivers of advanced ovarian cancer during the first-line treatment in an Italian survey. Methods Between January 2009 and June 2014, the ...
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#1Paul A. Pilkonis (University of Pittsburgh)H-Index: 84
#2Lan Yu (University of Pittsburgh)H-Index: 19
Last. Suzanne M. Lawrence (University of Pittsburgh)H-Index: 8
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The Patient-Reported Outcomes Measurement Information System (PROMIS庐) is an NIH Roadmap initiative devoted to developing better measurement tools for assessing constructs relevant to the clinical investigation and treatment of all diseases鈥攃onstructs such as pain, fatigue, emotional distress, sleep, physical functioning, and social participation. Following creation of item banks for these constructs, our priority has been to validate them, most often in short-term observational studies. We repo...
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#1Afaf Girgis (UNSW: University of New South Wales)H-Index: 68
#2Sylvie D. Lambert (UWA: University of Western Australia)H-Index: 26
Last. David C. Currow (UWA: University of Western Australia)H-Index: 79
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Having an understanding of the roles that caregivers play in the oncology setting may assist health care professionals in supporting caregivers with these tasks, and targeting services toward those most in need.
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#1Francesca RomitoH-Index: 11
#2Gil GoldzweigH-Index: 22
Last. Barbara L. Andersen (OSU: Ohio State University)H-Index: 73
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According to the recent worldwide estimation by the GLOBOCAN project, in total, 12.7 million new cancer cases and 7.6 million cancer deaths occurred in 2008. The worldwide number of cancer survivors within 5 years of diagnosis has been estimated at be almost 28.8 million. Informal caregivers, such as family members and close friends, provide essential support to cancer patients. The authors of this report provide an overview of issues in the study of informal caregivers for cancer patients and l...
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Purpose Although costs of lung cancer care have been documented, economic and social changes among lung cancer patients鈥 family caregivers have yet to be fully examined. In addition, research has not focused on caregivers with greater need for support services. This study examined various economic and social changes among distressed family caregivers of lung cancer patients during the initial months of cancer care in the USA.
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#1Michelle Y. Martin (UAB: University of Alabama at Birmingham)H-Index: 28
#2Sara Sanders (UI: University of Iowa)H-Index: 26
Last. Michelle van Ryn (UMN: University of Minnesota)H-Index: 57
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Author(s): Martin, MY; Sanders, S; Griffin, JM; Oster, RA; Ritchie, C; Phelan, SM; Atienza, AA; Kahn, K; van Ryn, M | Abstract: As cancer care shifts from hospital to outpatient settings, the number of cancer caregivers continues to grow. However, little is known about the cancer caregiving experience. This gap in knowledge is especially evident for racially diverse caregivers.This study, part of a multisite study of care recipients with either lung or colorectal cancer and their caregivers, exa...
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#1Steven S. Coughlin (Georgia Regents University)H-Index: 66
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BACKGROUND Patients with cancer and cancer survivors commonly rely upon family members and friends to act as caregivers to help manage cancer treatment and the late effects of that treatment. Informal caregivers provide a variety of supportive functions for cancer patients, including emotional, informational, and functional support, and practical assistance with skilled care activities. OBJECTIVE We examined predictors of unhealthy physical and mental days among informal cancer caregivers. Unhea...
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#2Shih-Hau FuH-Index: 2
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Background: The uses and gratifications theory suggests that various types of media can greatly affect people鈥檚 lives. This is especially true among older adults who tend to use media for leisure. However, there is insufficient research regarding the relationship between media usage, depression, and quality of life among older adults. Purpose: The purpose of this study was to explore the association between media usage (traditional and internet media), depression, and quality of life among older...
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#1Crystal Natvig (University of Colorado Denver)H-Index: 10
#2Susan K. Mikulich-Gilbertson (University of Colorado Denver)H-Index: 26
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PURPOSE Allogeneic hematopoietic stem cell transplantation (Allo-HSCT) is a demanding treatment that requires caregiver support during the first 100聽days post-transplant. Little is known about the association between caregivers' employment changes and their well-being during this lengthy and challenging time when caregivers may be balancing work with caregiving responsibilities. METHODS We used data from employed caregivers of Allo-HSCT patients who participated in two randomized clinical trials...
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#1Megan Hebdon (UofU: University of Utah)H-Index: 2
#2Jiayun Xu (Purdue University)H-Index: 11
Last. Lee Ellington (UofU: University of Utah)H-Index: 20
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Abstract null null Context null Navigating end-of-life is stressful and many caregivers feel unprepared for caregiving tasks. Being employed may further increase caregiver burden. null null null Objectives null Study objectives were 1) to examine the relationships among caregiver burden (financial burden, daily schedule disruption, lack of family support) and mental health (depression and anxiety), and 2) explore if preparedness for caregiving mediates these relationships in employed hospice car...
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#1Kendra Schwartz (WSU: Wayne State University)H-Index: 49
#2Jennifer L. Beebe-Dimmer (WSU: Wayne State University)H-Index: 25
Last. Ann G. Schwartz (WSU: Wayne State University)H-Index: 72
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PURPOSE Relatively little is known about caregivers of African American cancer survivors. Our goal was to identify the extent of burden among this group of caregivers. METHODS Responses from 560 informal caregivers of African American participants of the Research on Cancer Survivors (ROCS) study in Detroit, MI, were analyzed including demographics, assistance provided including activities of daily living (ADLs) and instrumental activities of daily living (IADLs), time spent in caregiving, and ca...
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#1Jocelyn Zhi Jia Lee (NUS: National University of Singapore)
#2Hui-Chen Chen (NUS: National University of Singapore)H-Index: 1
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This systematic review aimed to synthesize the effectiveness of psychosocial interventions on caregivers of advanced cancer patients, in comparison with usual care, on caregivers鈥 quality of life (QoL), anxiety, and depression symptoms. Comprehensive searches for published and unpublished studies were performed using nine electronic databases, two trial registers, and reference lists of included studies. Two reviewers independently screened, appraised, and extracted data. The Cochrane risk of bi...
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Background. Existing evidence indicates household income as a predictor of health-related quality of life (HRQoL) following a colorectal cancer (CRC) diagnosis. This association likely varies with neighborhood socioeconomic status (nSES), but evidence is limited. Methods. We included data from 1355 CRC survivors participating in the population-based Puget Sound Colorectal Cancer Cohort (PSCCC). Survivors reported current annual household income; we measured HRQoL via the Functional Assessment of...
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Background: Lung cancer (LC) care is resource and cost intensive. We launched a Multidisciplinary LC Clinic (MDC), where patients with a new LC diagnosis received concurrent oncology consultation, resulting in improved time to LC assessment and treatment. Here, we evaluate the impact of MDC on health resource utilization, patient and caregiver costs, and secondary patient benefits. Methods: We retrospectively analyzed patients in a rapid assessment clinic with a new LC diagnosis pre-MDC (Septemb...
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#1Hamid Sharif Nia (Mazandaran University of Medical Sciences)H-Index: 13
#2Ozkan Gorgulu (Ahi Evran University)H-Index: 9
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This study investigates the relationship between spiritual wellbeing, social support, and financial distress with depressive symptoms due to the COVID-19 pandemic. A path analysis was used to analyze data collected from 1,156 Iranian participants via an online survey. The results showed that spiritual wellbeing and social support were negatively related to depressive symptoms and financial distress. The impact of COVID-19 events showed negative associations with depressive symptoms. In addition,...
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