Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome
Abstract
Purpose: Rett syndrome (RTT) is a rare neurodevelopmental disorder mainly affecting females and is caused by a mutation in the MECP2 gene. Recent research identified the domains of quality of life (QOL) important for children with RTT but there has been no investigation of domains important for adults. This qualitative study explored QOL in adults with RTT and compared domains with those previously identified for children.Methods: The sample...
Paper Details
Title
Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome
Published Date
May 10, 2019
Volume
42
Issue
26
Pages
3800 - 3807
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